Tag Archives: Neurological Damage

Writing and Talking With a Lyme Brain is Hard Work. Ask Amy Tan & Rebecca Wells.

This week I’ve been spending my time making changes to the e-book version of Cooley & Rose and working on a format for a paperback version.images

While doing this, I struggled with my Lyme brain where years ago babesia bacteria took up residence, wreaking neurological havoc in so many ways, especially on my ability to recall words. This is a challenge for a writer. Amy Tan and Rebecca Wells have written about their experiences. When Wells created Ya-Ya in Bloom, the sequel to The Secrets of the Ya-Ya Sisterhood, she had already developed advance neurological damage. 1103_rd_tick

My brain was already frazzled by the time I started working on the novel-version of Cooley and Rose. Still, I pushed on and finished that, then wrote The Wyatt Sisters Songs of Sorrow, a story that is even more complex than the one that I’m hawking these days.

People say, “Oh, everyone forget words now and then.” True, but I will give you two brief examples of what happens with a Lyme brain.

Yesterday I was telling my husband about my new cell phone and all the tricks it could do and how I carried the instruction book around to read whenever I had to wait somewhere, like the drive-thru at the bank or a doctor’s office. He cocked his head and squinted his eyes and said, “You have a clock that does all that?” Years ago, I would have accused him of losing his hearing, but now I know better. Even though my brain thinks one word, often another comes out. This happens everyday. Unless I can’t find any semblance to the word I want. Then I just shut up. And sometimes he’s grateful for that.

A couple of days ago I came across “squawling babies” in Cooley & Rose and decided to look up the word “squawling” but could not find it. Then my mind told me to look up “squalling,” hoping it had a secondary or tertiary definition that would fit my meaning. I had no luck there with that either. Then I started going through the alphabet, and when I came to “B”, I stopped. “Brawling babies,” I said and imagined two little diapered fatties, lying on their backs, flinging their arms and kicking their legs. I was wrong again, but the strain of thinking was exhausting me. And then the word came. “Bawling.” It was the right word although a bit bland. I had to jot it down, because my brain kept insisting on returning to “brawling.” DSCN0143

With this path of thought written down on paper, it came to me that somewhere in my mind, the words “squealing” and “bawling” had merged to become “squawling.” Now, after having taken care of my corrections, I wished I’d stayed with the original because even though it’s not a legit word, it seems more expressive than “bawling.”

What do you think?